To avoid a lengthy summary of my situation please refer to this post
Some time in February I went to visit the Neurologist an experience I wrote about in the above post. I expressed very little about my experience with Dr. S as I was, at the time, extremely emotional. When I went into the meeting I was under the impression that I was meeting with my new Neurologist. I was excited and hopeful that I was going to get answers and treatment options, something Dr G had not provided. I had no idea that I was stepping into an ambush but that is exactly what it was an ambush.
Dr. S was extremely condescending and accusatory. When I explained the mix up to her in detail and with the collaboration of my husband she flat out told me that I have memory and mental health issues and thus I cannot expect anyone to trust my version of the story. She also indicated that I should not trust my own experience given my issues. I walked out of that appointment in tears. I cried for days afterwards. Sam wanted to report Dr. G for gross incompetence but I told him without written proof we don’t have a case. I am a terrible record keeper and tend to delete and dispose without much consideration so I figured even if we did scour our records the likelihood of finding something to corroborate our side of the story was unlikely. I wanted to move forward with treatment for PNES and put everything behind me. The experience was horrible and it severely damaged my trust in the health care system. Worse than that the experience has caused me to second guess myself to an unhealthy and debilitating degree.
I have been doing extensive spring cleaning over the last few weeks and today I decided to tackle some of our paperwork a task I have been dreading for years! Today I found proof a certified letter from Dr. R stating that I have Epilepsy. I can’t tell you how much it means to me. Why is it so important? Because it validates and corroborates what I’ve been telling Dr. G all along. Dr. R told me on numerous occasions that I had Epilepsy but Dr. G and Dr. S insisted so much that I was lying that I had started to believe I’d brainwashed myself and all my friends and family besides. I needed to see written proof. No I don’t plan to pursue legal action because I want nothing at all to do with any of the doctors involved. No I don’t plan to find a new Neurologist for treatment of Epilepsy I am still proceeding with this being psychological in origin. I doubt the competence of every doctor involved but the facts remain that medication was not effective so I have no choice but to take an alternate route.
I received an unsettling letter in the mail recently asking why I wanted to discontinue counseling services. I emailed my therapist promptly telling her I had no such intentions. I asked her why she thought I wanted to discontinue and it appears that when Dr. S discontinued my services that she attempted to discontinue more than just my Neurology services. Am I pissed off? You bet but I have a feeling if I attempt to contact Dr. G or Dr. S in any form they would just make a mess of everything. I do wonder if I need to find a new therapist as this one has been in contact with Dr. S and Dr. G and has already been confused. I fear I might not be able to straiten the situation out properly and establish a trusting relationship.
Now for some advice
Save everything from your doctor
Ask for copies of all your tests and records and keep them
Record conversations/appointments especially if your are suffering from any memory or mental health issues because they will dispute everything you say